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Why 75 Percent of Anxiety Suffers Fail to Get Proper Care

Nothing in the affairs of men is worthy of great anxiety. —Plato

According to the National Institute of Mental Health, anxiety disorders as a group are the most common mental disorders among Americans, affecting 18 percent of people in any given year. Over 20 percent of those affected by anxiety disorders are considered to have high severity problems, representing more than 4 percent of the U.S. population. This means, that on average, out of every 100 people you pass on the street, 4 of them will have a “severe” anxiety disorder.

There are multiple risk factors for anxiety disorders, including having been shy as a child, being female, financial limitations, being divorced or widowed, a history of stressful life events, having close biological relatives with anxiety disorders and parents with mental illnesses. And, according to a widely publicized 2017 study in Psychological Services (Weissman et al., 2017), mental illnesses, including anxiety disorders, are on the rise while care is lacking for many—even though effective treatment is theoretically available. Understanding what keeps people from getting treatment is essential to figure out how to more effectively fight mental illness.

Over the course of a lifetime, it is estimated that 12 percent of people will develop SAD, and 6 percent of people will develop GAD. The impact of these conditions wreaks havoc on quality of life, causing significant distress and dysfunction, with increased risks for addiction, suicide, health issues, poor social function, and suicidality. To make matters worse, according to study authors, the National Comorbidity Survey Replication revealed that an enormous fraction of those with SAD or GAD, 75 percent of the nearly 10,000 people surveyed, had not received treatment within the year leading up to the study (Wang et al., 2005).

Looking more deeply

A new study from researchers at Massachusetts General Hospital and Temple University (Goetter et al, 2018) identifies the reasons that people suffering with Generalized Anxiety Disorder (GAD) and Social Anxiety Disorder (SAD) don’t receive adequate care. While prior research suggests that the most common reported reason people with SAD or GAD haven’t gotten care is out of fear of what others will say or think, showing how powerful stigma really is, other common reasons include lack of financial resources and not knowing where to go for care.

To dig deeper into understanding why those with SAD and GAD don’t get care, researchers recruited 226 participants with only SAD and/or GAD (and not additional conditions such as depression or substance use) between the ages of 18 and 65 to participate in a detailed clinical assessment and survey about barriers to care. Of those 226 participants, 121 were previously diagnosed with SAD and 105 with GAD. A self-selected group of 171 (those who were interested in entering a more detailed phase of the study) as well as 55 more with additional diagnoses went on to complete a variety of assessments.

Measures

Researchers administered the Structured Clinical Interview for Diagnostic and Statistical Manual of Mental Disorders (the SCID), indicating whether they had SAD, GAD (or both); the Leibowitz Social Anxiety Scale (LSAS), looking at social and performance anxiety; the Hamilton Anxiety Rating Scale (HAM-A); the Montgomery-Asberg Depression Scale (MADRS); and the Range of Impaired Functioning Tool.

They also rated participants using the Clinical Global Impression Scale-Severity (CGI-S), a common estimate of overall burden of illness. Finally, participants completed self-report measures including demographics and, critically, the Barriers to Treatment Questionnaire (BTQ) , which gauges how much each of the following reportedly gets in the way of care for participants with GAD and SAD: how they perceived clinical interventions, how well they thought treatment might work, and related factors; problems with money, or insurance, and logistical issues including time or physical access to care; and experiences of stigma and shame around illness and treatment.

Why don’t people with social and generalized anxiety get treatment?

First of all, researchers found that participants with GAD and SAD had moderate illness severity, on average across both groups. Similarly, scores on the BTQ were in the same range, regardless of diagnosis. Greater barriers to care were associated with being younger in age, being from an ethnic minority group, and being impoverished. Barriers to care did not track with gender or educational level. Notably, the more severe the anxiety, social or general, and the greater the overall impairment, the higher the BTQ. This means that those with more severe and impairing symptoms had greater difficulty getting treatment, the opposite of what we’d want to see.

What were the greatest barriers to care? Logistical issues and stigma or shame were the top reported reasons, by between 60 to 80 percent of participants for different dimensions of each obstacle (see graph below for specifics). Those with GAD most commonly referenced wanting to deal with issues on their own, feeling embarrassed, not knowing where to get treatment, and anxiety about how to pay for care. Those with SAD most commonly referenced wanting to handle problems on one’s own, embarrassment, and not knowing where to get care.

Shockingly, or perhaps not so shocking, over half of the participants said they didn’t know where to go to get treatment. On one hand, this is pretty incredible, as this study was conducted in a big city with a lot of public education and a ton of hospital which are world-renowned for treating mental illness (among other medical conditions). On the other hand, people are really good at ignoring things which are right in front of us, especially when it is about something we are avoiding and don’t want to think about, as is the rule when something is shameful to oneself and stigmatized by society.

Even with the constant flow of media attention to mental health issues, people with SAD and GAD aren’t getting the help they need. And the more severe the symptoms, the greater the perceived barriers to care, a troubling finding. In addition to improving public health efforts, the study authors suggest that making treatment more available and easier to access could help, including more use of approaches like “bibliotherapy” (e.g. the use of directed self-help materials), computer-based treatments including online and virtual therapies, telemedicine, and stepped-care models (starting with recognition and care by general providers, and moving through stages of more intensive care for those who do not respond to earlier stages).

Reducing societal stigma and raising awareness, along with corporate wellness-based initiatives, might also allow people to build time for treatment into their work schedules, without fear of reprisal. For ethnic minorities, not only may barriers to care themselves be higher than for whites, but efforts to reduce shame and stigma may be less effective for those groups, as well. Regardless, the study authors wisely recommend that clinicians not only properly screen for and diagnose mental illnesses such as SAD and GAD, but that they also discuss the various barriers with patients, and perhaps even use the BTQ as a tool to both inform the dialogue with patients as well as to identify individual areas to focus on so people can get to available treatment.

Upon reflection

Standard public health approaches don’t seem to be doing the trick. Suicide is on the rise, anxiety is on the rise, depression is under-treated, and geopolitical uncertainty just adds fuel to the fire. As with other fields, novel approaches based on technology and a better understanding of human psychology are required to enable people to recognize they need help, and figure out how to get it. People close to those with problems such as anxiety disorders can find ways to enable loved ones to get care without adding to the burden of stigma and shame, possibly averting tragedy. Parity legislation, which dictates that insurers pay for behavioral health the same as physical health, must be better implemented.

As it is, between lack of insurance or other means to pay for treatment of anxiety disorders, poorer coverage for behavioral health and outsourcing of mental health to second-party providers, and frequent denial of arguably valid claims, getting treatment for mental health issues remains far more difficult than it ought to be. And we all pay the price. There’s enough difficulty because of how people feel about having anxiety disorders (and other mental health challenges) without placing additional obstacles in the way. If you believe you or someone you love may have an issue, remember that there are effective and accessible avenues for relief available, and no one should feel ashamed of or deterred from seeking appropriate help.

Breakdown: Barriers to Care in GAD and SAD

Source: Goetter et al., 2018

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